Laura Cooper Fights for the Right for Disabled, Under-Treated Pain Patients to be Free from Needless Suffering

Ignorance, mis-information, dis-information and sensationalism are the gas fuelling the fire of mass drug hysteria spreading across the globe.  Hardest hit are those needing the life-saving opioid class of drugs to manage severe pain; drugs such as codeine, morphine, fentanyl, oxycodone/oxycontin, and methadone (which is not just used for drug detox but pain management too).  Many, many legitimate pain sufferers experience these drugs to be by far the most effective and safest painkillers with the least amount of side effects.  Yet opioids are being demonized and cruelly denied to tens of thousands of people suffering from under-treated pain. 

People die from pain all the time, but you won’t see it on their death certificates.  Isn’t this one of the worst ways to die, while suffering?  There is a significant population of disabled people suffering from chronic pain (i.e. lasting longer than 6 months and unfortunately, sometimes forever and progressive), and their numbers are growing.  These voices are isolated and very restricted from advocating for themselves because they are suffering like sick dogs wherein it takes all their energy to just get through each hour of each day with little to no energy/ability to surf the web or make phone calls, let alone walk or drive around.  Some of these people end up killing themselves not because they want to die, but because their physical pain is too much to endure and without adequate doses of painkillers, death is their only way out.

Any attempts to address the health crisis of under-prescribed pain patients is silenced and ignored by turning the spotlight on drug abuse.  But before you look towards that noisy, blinding light and leave under-prescribed pain patients in the dust, please ask yourself why a population who chooses to abuse drugs is more important than a population who needs the same drugs to manage serious pain.  This is the message to chronic pain sufferers because they are treated this way, and it’s only getting worse.

There is intense controversy around opioids because of drug addiction.  TV shows like Intervention use scare tactics to make the public believe that opioid pain medicine is extremely dangerous (only if abused!), instantly addictive and life-ruining.  These TV shows neglect to balance their hysteria and ignorance with the fact that these very same drugs also SAVE LIVES and PREVENT HUMAN SUFFERING when taken responsibly and as prescribed.  The problem is that people who mis-use/abuse the drugs are getting all the spotlight, which leaves pain patients choking in their dust and keeled over in pain, their voices going unheard and dismissed by doctors as being drug-addicted or “drug-seeking” because the public only hears the fear-mongering drug addiction stories.

Pain management doctors are in a real bind too.  On the one hand their job is to “Do No Harm”, which for incurable illnesses that comes with severe pain, is simply managing patients’ physical pain – pain levels that are hellacious to deal with.  On the other hand, doctors are scared to prescribe adequate opioid doses due to the mis-use and abuse of these drugs.  A critical question here that must be asked is, Why should the prescribing of painkillers be based on the behavior of drug abusers?  It’s a paternalistic, disrespectful and unjust way to treat people.  Doctors should not be held accountable if their patients decide to swallow a whole bottle of pills instead of take the amount prescribed.  Pain doctors are not and should not be policing people!  But this is what we have.  The landscape is especially troublesome in the United States where organization like the DEA go on witch hunts arresting and convicting doctors for people’s mis-use of pain meds.  Is this not the height of absurdity?

A major problem around this issue is the confusion and conflation between drug addiction and drug tolerance.  “Tolerance” is simply a side effect of opioids wherein your body gets used to the medicine(s) and requires higher doses for the same effect.  This works the same for everyone – pain patients enduring horrific pain need gradual increases of their drug dosages to get the same pain relief, and drug addicts also need higher and higher doses to get the same “high”.  That said, pain patients respond differently to opioids in that they get pain relief and are then able to go about their business and LIVING LIFE versus getting “high” and *escaping* life, which is what addicts tend to do.  So here we have two totally different groups of people bound together by this one class of drugs, and the most vulnerable, marginalized, and suffering group who NEEDS this life-saving pain medicine is being grossly under-prescribed, ignored and made to suffer.  One article explains the situation of dosing and tolerance as such:

[T]he dividing line [of dosing] is far from clear and not subject to universal agreement even within the profession.  Any patient in need of relief can, over time, develop a chemical dependence on a lawful drug–much like a diabetic becomes dependent on insulin.  And, once a treatment regimen begins, many patients’ tolerance to the drug increases. Thus, to produce the same analgesic effect, doctors sometimes need to increase the prescribed amount, and that amount varies from person to person.

Enter Oregon-based Lawyer Laura Cooper, whom in 2008 launched a first-of-its-kind lawsuit:

Laura Cooper, an attorney representing the Pain Relief Network, has initiated a class action lawsuit on behalf of harmed chronic pain patients in federal court in Spokane, naming the Washington Department of Health along with other public health entities and officials (including a group of agency directors), holding them responsible for this medical crisis. If successful, the Pain Relief Network lawsuit would compensate those chronic pain patients for the substantial, categorical harm foisted on them by public health officials and should result in a change in public health policy that would require such officials to take the needs of such patients into account when making policy. [source]

In the lawsuit, Cooper explains opiophobia:

“Opiophobia” is an irrational discriminatory phenomenon that has long been recognized as an impediment to effective pain treatment.  It is described in…a textbook of pain medicine issued from the University of Wisconsin [as follows]:

“Opiophobia is the syndrome of failure to administer adequate opioid analgesics because of the fear of producing addiction or toxicity.  The etiology of opiophobia is multifactorial:  Peer pressure (provider and patient), regulatory agency pressure (real or perceived), and lack of education on opioids and the fundamentals of pain management all contribute to its persistence.  Lower socioeconomic groups, younger patients, and other minority populations are particularly likely to be its targets; these patients frequently receive lower doses of opioids but higher levels of scrutiny.  All of these factors contribute to the underuse of these relatively simple and very effective medications, due to no fault of the patients.”

Laura Cooper is no stranger to chronic pain; she has multiple sclerosis and intradural extramedullary spinal cysts which significantly disable her and cause her pain, weakness and numbness.  Clearly her firsthand experience of chronic pain informs her fierce advocacy work, and I hope she is able to incite the desperately needed changes in opioid pain management.  Her work inspires me to seek the same kind of changes here in Canada since no kind of legal action of this nature exists to my knowledge, and this issue strikes my home too as my wife is part of this under-prescribed, pain-suffering population.  I’m no lawyer though, so that is one barrier I need to figure out how to maneuver (I’ve reached out to different lawyers but have heard nothing back).  Not giving up, but needing to figure out how to navigate this monstrous nightmare with so many political barriers.

On behalf of those of us frustratingly and helplessly watching our loved ones needlessly suffer, thank you Laura Cooper for doing what you do.

AN IMPORTANT NOTE:

People with terminal illnesses aren’t the only ones who deserve compassionate pain relief.  Just because this population has an “expiry date” doesn’t make them any more important than those with no death date but instead are living day after day trapped in a pain-riddled boy.  This is no way to live.  Above all, listen to the pain patients when they tell you what they need and want.  THEY are the experts of their bodies and what works and doesn’t work for their pain.

ON PSYCHOLOGICAL DISTRESS & EFFECTIVE OPIATE-USE:

Anti-depressants (SSRI’s) and anti-psychotics are prescribed like tic tacs to treat depression and other psycho-social-spiritual distress.  They rarely work and do more harm than good, often causing suicidality, violence and mania (source).  Opiates can be a very safe and effective treatment for people suffering from serious mental distress, though there are very few studies on this because it is all political and drug companies who make up a large part of the funding of clinical trials do not manufacture and market opiates, hence no studies or support for their use.  Here is a 1999 study showing the effectiveness of opiates for depression.  I have come across only one other study done in 2010 showing the same positive results, but can’t seem to find it now; will update if I do.

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21 thoughts on “Laura Cooper Fights for the Right for Disabled, Under-Treated Pain Patients to be Free from Needless Suffering

  1. It is cruel and dangerous to under-prescribe pain medication. Thank you for making me aware of Laura Cooper and this great cause. Now off to read more about this compassionate, dedicated and brave woman…

    • Sam Lain says:

      I was pleased
      to locate this site. Two pain clinics that I have attended in the past 4 years have been shut down because they were deemed “pill mills”. I am in Knoxville Tenn and there is a war on pain treaters and by extension chronic pain patients. It creates a treacherous situation for those with legitimate and often severe pain.
      I understand the need the need to screen for those who seek pain medicine to get high or for profit but there are ways to screen for that. In the hysteria that is created because a few abuse and a tiny few over dose safe and effective medicines like oxycodone become called “hillbilly herion” and any that dispenses an amount of medicine to treat someone who suffers from severe pain is deemed a pill mill or a drug dealer. There are 3 former pain clinic operators on trial facing criminal charges in Federal Court for conspiring deal drugs for cash and operating a pill mill. uiuu
      The over simplification of this matter is staggering. Those who judge often know nothing about the life to ruining effects of chronic pain. I have to pay 300.00 a month to get an increasingly small amount of pain medicine. And the increasing trends is for the pain treatment centers is to not take insurance. Although unlike many think it is not solely based on g people jreed. Taking insurance leaves a paper trail and they may with to “legitimate” but t in the current climate they are terrified of the increasing regulations and restrictions. And ultimately much of the populous wanting them to dissappear completely. That is until they incur a chronic pain condition. If anyone is interested in media created hysteria regarding pain treatment go to Knox Knews.com and you will see coverage of a Fed. Ct. case placing a former owner of a pain clinic on trial. As a lawyer who has had trouble with pain but more trouble due to judging me due

      • Feminist Rag says:

        Hi Sam, thanks for your comment — did the last part get cut off? I am so sorry to hear that you’re also under-prescribed. No one should suffer like this!

        The insurance problem and out of pocket fee per visit is just one extra layer of ridiculousness to this entire treacherous ordeal indeed, especially considering the high rates of poverty among disabled people. It is a very scary position to be in isn’t it? It’s a full-stop health crisis and human rights abuse. I wish there were more lawsuits being launched against clueless able-bodied policy makers and enforcers. You’re very right in that those who judge have no idea what chronic pain is unless they endure it themselves, or see a loved one go through it, though some are even quick to judge their own loved ones as addicts.

        A friend of mine was very lucky to have been treated for one year by a very compassionate (and intelligent, chemistry-minded) pain doctor in Florida whose philosophy was “why bother prescribing opiates if you don’t prescribe enough?” — he truly saved my friend’s life by giving it BACK to her. The doc was 75 yrs old and also endured pain, so no wonder he understood. Tragically, the DEA swooped in SWAT-team style into his office and arrested him — such over the top testosterone-fueled theatrics towards a 75 year old man with a hunched, pain-riddled back! Luckily he didn’t go to prison, he just had to give up his license. But the ordeal left 300+ of his patients hanging and back under the care of under-prescribing docs.

        Indeed the over-simplification of it all is staggering. The rabbit hole runs very deep; seems to me it’s 100% political and economic with little to do with addiction but used as a convenient red herring.

        The War on Drugs is a War on Disabled Pain Patients.

        What kind of law do you practice, Sam? Have you/are you considering legal action similar to Cooper’s? In case you didn’t notice and if interested, Cooper’s Complaint in its entirety is linked in the post. Hope you’re able to find better pain relief soon Sam, in whatever way you’re able..

    • deb says:

      despite previous overturning medical board rulings as unjust and failing to provide due process, they finally managed to put my long time compassionate doctor out of business for good when a circuit court judge held making a decision on her case for almost a year while she went in financial ruin. 50 patients were at her hearing at the medical board and the board stated “we do not need to let those people cloud the issue,” a clear and public statement of how the state of Arkansas thinks of its chronic pain sufferers.. Since her office was shut down a day before my appointment I was left in pain and forced to quit my job and on disability since. I’ve been treated with opiates since I was 21 for crohn’s disease stomach cramping and dirreaha and lived in chronic pain thanx to doctors ignoring my serious medical condition of a mass growing on my sciatic nerve that crippled me and nearly killed me by time it was diagnosed and extensive surgery and long time hospital stay resulted in saving my life. In 2000, again doctor caused damages and ignored serious medical situation resulted in my being admitted through ER with basketball sized infection that took another year of agony before explatroy surgery discovered my tube and ovalaries as well as numerous adhesions, scar tissue and internal dmanages existed and my uterious is not even identifiaable on a ct scan. I have RA, fractured vetrbers anpain in lower abdomen from crohn’s out of remission. as well as numeours mental probleMS THAT ALLOW ME TO HAVE A psd (SERVICE DOG. AT 40 YEARS OLD i FINALLY FOUND OUT WHAT LIFE WAS LIKE BEING PAIN FREE AND IT WAS TAKEN AWAY NOW I PRAY FOR DEATH DAILY AS i HAVE NOTHING AND NO WAY TO ENDURE LIVING IN PAIN AND TREATED LIKE AN ADDECT FOR DOCTOR CAUSED CONDITIONS THAT DESTORYED MY LIFE AT 21 YEARS OLD.
      . . My doctor treated all my medical conditions had my

  2. Feminist Rag says:

    Hi Terre, glad you found this useful, and indeed cruel and dangerous. It is such a nightmare, and all so unnecessary! I just added a note about treating serious mental distress with opiates, because I strongly feel this is a good treatment for this population also. No one deserves to suffer; some people are able to curb their mental suffering with exercise, diet, exercise, meditation, etc., while others need much more than this; war vets and prostituted women with PTSD come to mind.

  3. Free Monkey says:

    Great post. It’s not a war on drug addiction it’s a war on pain patients. Addicts will always get their fix one way or another, if not with opiates then something else, they don’t suddenly stop taking drugs just because a law changes, if anything the way they obtain them just becomes more cunning, destructive and dangerous, meanwhile it’s the pain patients who pay the price. If they could just find a way to neutralize or separate the part of the drug that gives the high, they did it with ergot (LSD), not holding my breath waiting for that though.

    A lot of it is ignorance and vigilante hysteria, something happens, they go straight to the drug, there is an outcry and we lose more rights, we need more voices to speak up but it’s hard with both the stigma and the exhaustion to get things happening and for anyone to listen. As I’m writing I know how silly this sounds but we need a better PR campaign, we only had our first pain week here last year. It’s nauseating to think about but part of me thinks if it were a more “sexy” cause with ribbons, badges and celebrity endorsements more people would kick up a stink on our behalf. There should be more campaigning for proper pain relief to be a basic human right, I’m sure “WHO” and the UN have papers on it (if not something to that affect already) it’s just not being honored.

    • Feminist Rag says:

      Thanks for the comment Free Monkey, you are bang on, and it truly is a war on pain patients. As for drug abusers/addicts, I think people have a right to do whatever they want to their bodies, however destructive. Certainly addicts leave a lot of destruction in their addiction wake, but there is help out there for when they’re ready to stop. They’re usually escaping from emotional pain, so once that is dealt with, the drug coping mechanism gets replaced with healthier tools.

      You’re very right in saying addicts will always find a way to get their drugs. Many of them are very driven, dedicated, manipulative and resourceful people, the perfect recipe for ‘successful’ capitalists! I always say that the skills that addicts develop in maintaining their drug habits would make them very successful entrepreneurs. But all that said, I try not to get too caught up in this side of the argument because once again, it takes attention away from disabled pain sufferers, who are my first priority. And everytime someone says “but what about the addicts?!” my thinking is “what about the pain sufferers?!” — for everytime we look at the addicts, we look AWAY from the pain patients.

      It’s such a bind for pain patients because they have to be careful with how much noise they make for fear of being cut off by their doctors who may perceive them as ‘drug-seeking’ or ‘non-compliant.’ It’s a ridiculous and restrictive position to be in, on top of the lack of physical ability TO advocate for themselves. I don’t think your PR comment sounds silly, it’s true, and you’re so right, disability and pain isn’t “sexy” which IS nauseating. You know what is sexy? Compassion! Maybe that should be the marketing angle for this issue. Celebrity endorsements would definitely do this Cause some good. The good thing is that there are many different ways to advocate and make noise around an issue, so we just gotta keep at it, connect with others in the same boat, and keep doing whatever we’re able to do with the tools and resources we already have. It’s hard to find much information on this side of the drug story isn’t it?

  4. deb says:

    i think everyone who is fed up with suffering and ready to end their life needs to organize a sit in at the white house wearing a shirt stating The dea is resposible for my death and want them charged with Murder after living in agony from the non stop torture of chronic pain they caused to be untreated. Maybe a few thousands bodies littering the white hous lawn will bring attention to the desperation of chronic pain sufferers who have had their lives taken away while the DEA tactics result in increased drug related violence, illicit drug use, and create a demand for black market with increased prices and increase popularity of highly illicit drugs like heroin, Its pretty bad when you walk out of a pm due to his attitude and do not accept his offer of medications and still get your reputation slandered in his report. Then get kicked out of your PM for going to the hospital for antibiotics when the report clearly stated no narcotics were requested orprescribed. All my life I’ve had one doctor and that doctor specialist or not took care of my medical needs. I do not go to doctors unless I am in pain so yeah I’m drug seeking and usually near dead when I crawl into a doctors office. I’ve had two regular doctors in my life that understood me and kept me healthy now dealing with pain clinics who’s only concern is money and covering their ass which means trashing the patient justifying their bogus actions or mistakes and i’M FED UP. I just want one doctor that will treat my pain, and my medical and psychological needs as my doctors in the past. I was on the same dose of opiates for 6 years with the only need for increase being due to the forumula change

    • Feminist Rag says:

      Hi Deb, thank you for your message, my heart hurts for you and my Spirit is angry on your behalf, it is so horribly WRONG, what the law and doctors are doing and not doing that puts people like you in the position you’re in.

      I too had thought of charging the government with murder if god forbid they had killed my partner when she was in a similar position as you and knock on wood it doesn’t happen again but you never know because they make us so dependent on them and then they just tighten the noose more and more. What a nightmare. The sit-in you described sounds awesome; it would send a powerful message!

      I hope to god you are able to find a decent doctor and some pain relief soon, in whatever way you are able. Hang in there deb, I hope something gives soon! I wish so badly that I could drive a truckful of opiates to you and everyone else suffering so needlessly. Thinking of you.

  5. Sara says:

    I would love to speak with someone about this happening to me, and many other chronic pain patients at a practice in Indiana. All patients who take a long acting medication plus short acting for breakthru are being forcibly weaned down and OFF of the breakthru meds…with no rationale given. Alternatives, told to take more tylenol or NSAIDs(contraindicated for me). I feel this is neglect and it is causing me undue pain and suffering but have no advocate.oh, and also told not to expect an increase in longterm pain medication. Eventually someone will die due to this doctor’s action. Pain Management doctors are so very hard to find. I have done the blocks, the injections, PT/OT tens units, relaxation, etc…and two failed surgeries!

    • Feminist Rag says:

      Hi Sara, I’m sorry about your predicament, it is absolutely neglect on the doctors’ end!! Gross neglect with laughable “alternatives” that can only be suggested by people who have no clue what it is to suffer from pain. I know it’s hard to find advocates around this issue, or to organize it given the low energy levels and pain suffering you’re in to begin with. Have you tried reaching out to lawyers or other pain patients in your community? I’ve tried contacting lawyers before with no luck, but need to go back to the drawing board. I wonder if some doctors are open to being educated about opiophobia though I know it’s such a tightrope to walk. Many doctors probably aren’t open to it but surely some are. How would you feel about asking/talking to your doctor about this and telling him about the Laura Cooper lawsuit? I wonder how docs would respond if they knew the OTHER kind of lawsuits they can be charged with since they probably are only aware/worried about being accused of overdosing people.

      I wish you much luck in finding better pain relief and am so sorry that you’re suffering. :(

  6. Suffering Chronic Pain says:

    I persoally know of 3 people who have died within the last 60 days in Central Ohio because Doctors cut them “cold turkey” off of thier pain medications. One per example was a 71 year old Woman who was dying of Cancer, here regualr Dr. who actually prescibed her pain medication relocated to another state, so she had to see his associate in the same office. His associate, her new Doctore stated he would no longer prescribe her any pain medication, after surviving over 3 years with cancer, she died a horrible suffering death because of her only mistake being she lived in ohio where she could not get the care someone who is suffering horribly deserves. Another person I know who is in their 50’s whom was permanently and totally disabled because of severe spinal cord injruies, had been on pain medication since 2006. His Doctor cut him off because he this disabled Gentleman who had already had over 15 steriod injections which cause severe loss of bone mass when done continually, he refuse the 16th one and his Doctor cut him off of all of his pain medications at once stating he refused treatment. In other words if you do not go along with your Doctor scamming Social Security for test and treatments that have already failed in helping you in anyway. The Governor Kasick of Ohio states the Doctors are now God over all of their patients who suffer from severe pain in Ohio. Now I am in no way discussing anything about some person who is abusing drugs, I am making statements about people who I know that have severe proveable chronic pain in Ohio. You see I just may be the 4th to die that I know because days back, my Doctor cut me off of all of my Pain Medication. I am permanently and totally disabled. I have been in the bed screaming and crying for 9 days now, I can barely move, my friend is typing this for me. You see all of these laws that Governor Kasich of Ohio is passing are not hurting the drug seekers, they are only hurting real people who have severe medically PROVEN chronic pain issues. It is like he is intentually using Drs to murder people who are disabled with chronic pain in Ohio. He is not lowering the cost of Medicaid and Medicare by doing so, just the other side, he raisin the cost, Because those who are disabled and abused like this by the Laws of Ohio that allow Doctors to intentially abuse their patients forces those patients who have geniune proven medical chronic pain isssues to go to Dr after Dr hospital after hospital looking for the care they need to stay alive which will now raise the cost of their medical care to absolute drastic perportions. Think about, common sense would tell anyone, this is just flat stupid way of handleling a problem. Simple solution, if a patient does not have the appropiate test done to prove they have an injury or injuries that state they need pain medication, then have them take the test needed or do not precscibe the pain medication. People who have legitimate severe chronic pain are the only ones who suffer because of what incompetent Doctors and Politicians do concerning Pain medication. The Governor of Ohio, history will show, he was the worst Governor Ohio ever had, in his entire career all he has ever done was put more money in big money pockets, now he is using the disabled in Ohio to do the same thing he has always done through his entire career. People of Ohio will vote him out next election. My hope is that that several Primary Doctors in Ohio which at this time includes hundreds of Anesthesiologist in Ohio who tell their patients all they need for pain is steroid injections are sued and lose their medical license. You see all of these steroids will cause these patienst more severe pain along with severe bone mass deterioration due to over use of steroids injections. They can add all of the additives they want and a steroid is still a streroid and has side effects to each and every patient along with that, steroids do not work for over 60% of the patients who are injected so what happens now, more medical cost because of all the games that are being played by Doctors and Politicians. The drug seeker does not suffer from theses games, only the true geniube pain suffering patient are the ones who are dying because of this new Game people are playing with chronic pain suffering patients in Ohio. Sooner or later will be happening to a family member of the rest of the people in ohi and when it does, remember those who died so you could change this tragedy way to late of when you should have stood up, for a chronic pain suffering person, pain pills are a medication that helps give them some dignity in their lives. That has been taken away in Ohio at this time.

    • Feminist Rag says:

      Hi Suffering, I’m so sorry you’re going through such a nightmare. I emailed you.

      • Need help in Ohio says:

        What is wrong with these drs in ohio ??!!! I’m trying to find someone to help my dad get the care he needs..He is 63 yrs old. He has suffered with chronic pain for almost 30 years on top of being diabetic the last 13 yrs. he is permantly disabled. he has taken pain meds all this time and because of he has taken them so long he takes higher doses. He has had 8 back surgeries, has 3 more herniated discs and degenerative disc disease.. He had a primary care dr and 2 months ago he went for appt. and usual urine test .. He told the dr he had been out of his one med a couple days beforehand and yes because he took more of them than he should have because he was trying to do things that he just isn’t able to do anymore and sometimes he just gets frustrated. Well he had his visit and his meds and went home. Several days later he gets a letter in the mail from his dr saying that he will not treat him anymore that his urine test came back negative for the med he told him he was out of and dr said he must be selling them and he was not treating him anymore.. Really??!!! We are just sick and cannot believe this given his long health history… We have tried to contact him and he refuses to even communicate with my mom or dad and he refuses to release his medical records to anyone including us. We were trying to get him into a pain management doctor and they require a referral and have even contacted this dr themselves and he won’t send them anything. Now he has been labeled because of this dr and no one in this town including the community hospital wants to treat him. He has been without meds for over a week and has been going through withdrawal and few days ago developed horrible stomach pain. Went to ER 2 days ago they did bloodwork and ct scan for stomach came in later said everything was fine it showed nothing gave him some tramadol and phenegren ?and sent him home. Took him to health dept dr today. They requested his bloodwork from hospital .. That dr said it showed dehydration,pancreatitis and possible kidney issues . She wants him to go have bloodwork again in the morning for this .. At the same hospital. Shouldn’t they have seen this ?? Seriously!!! It’s a small town and they are all connected and he has been wrongly labeled .. I can’t believe given his history that someone could even think this. Now no one wants to help him and I am seriously afraid he could die!!! We don’t know what to do or where to go !! It’s hard to give all details of this 30 year health history. Please help !!!!

      • Feminist Rag says:

        Jeezuz, I’m so sorry that your dad is so needlessly suffering! The pain management industry is a cruel, ignorant plague upon disabled people!

        I’ve emailed you. Good luck!

  7. furiousecho says:

    Another hypocrisy with this whole screwed up mess, is the urine tests. I have never taken drugs before in my life nor have I ever sold my pain meds (because duh I need them) but I have to pay about $600 every few months to confirm the above stated. I have insurance but still have a deductible so I’m paying all this money out for nothing because someone else abuses drugs and pain meds. My wife is in a real hell hole of a job right now but it’s difficult to change when you’ll lose your insurance. Then we’d have to pay the full force of these useless urine tests.
    I agree as well with the rest of this post and personally thank you for having the courage to post it. There is so much social stigma with pain meds. Every time I’ve needed more meds, I feel like the doctor is evaluating me like a druggie. Going to your doctor should be a safe and comforting experience. Who likes going to the doctor anyway or needing to go. I think we’d all rather be well, but when you are hurting or scared and you get this cold evaluation you feel sub human. Anyway thanks so much for this post and for letting me rant a little.

    • Feminist Rag says:

      Hello furiousecho, thanks for your comment and rant away, this issue is rant and rage worthy!!! It’s a crime against humanity to let pain sufferers suffer this way! And wow @ paying for urine tests! One more layer of idiocy and nonsense to this whole tragedy. I am in the same boat with a hell hole job but being stuck there due to a good insurance/benefits package, because there’s no way in hell we can afford $2,000/month for this life-saving medicine. The only way pain doctors will “get it” is if they themselves have the misfortune of experiencing debilitating chronic pain. They’ll “get it” real fast then. I wouldn’t wish this experience on my worst nightmare, but unfortunately this is what it takes for some people to gain some compassion, is to walk (more like lay there suffering like a wounded animal) a minute in a pain sufferer’s shoes.

      “Drug seekers” is such a crock. Duh indeed — people in pain literally ARE seeking drugs in order to relieve their pain, there should be no shame around that, just an immediate, humane response! It’s all so unnecessary, the physical hell people are living in, due to raging opiophobia.

      Thanks again for your comment, and if you have more to rant and rage, you are more than welcome to here comrade.

  8. jessica white says:

    Thank you for understanding the people that are suffering from chronic pain. I am single mom of 2. I suffer from rsd due to multiple nerve and tendon transfers from 1988-1991. Always had pain but was tolerable til last oct. Then went was referred to orthopedics where I was informed that calcium had built up in my arm and it is pushing on my nerves, tendons and blood vessels. The problem is that there isn’t enough nerves or tendons for them to do surgery and remove because I would more than likely lose all function in my arm/hand. I’ve tried to do everything the doctors have asked. Multiple meds that don’t help. And treat me like I’m some junkie. I feel like because I’m on medicaid that I am treated unfairly. To add icing to the cake I had to take a break from college where I’m majoring in medical assisting . Which I chose the medical field to help people but now I’m rethinking returning for anything medical because it isn’t about helping people anymore. I don’t know what to do anymore. I need help please. Breaks my heart that my 10 yr old daughter has to help me shower among other things.

    • Feminist Rag says:

      Hi Jessica, stories like yours break my heart and enrage me so much, that profit and politics cause so much needless suffering. :( I am sorry I cannot help you, all I can say is hang in there, be creative and think outside the box. We gotta do whatever we gotta do to not suffer! Much Luck and Love to you.

  9. jeff says:

    I’m disabled in severe pain my dr reduced the meds that have worked for over ayear.she’s afraid of dea.I’m going to have to end my life soon.I can’t stand the pain anymore.knowing I had some relief but know and future pain is getting too much.I can’t use computer too much,this hurt towrite.if you could email me and ill give u my phone# if you want details.its ok if you don’t but please help many people like me are taking our lives.history will prove this.

  10. loophole11 says:

    Wow! Needless to say, I was surprised to find this. I AM Laura Cooper — the attorney in Eugene, Oregon of whom this blog speaks. If anybody wants to contact me, you can always do so at: laura@lauracooper.com. However, be warned that I am a lady of “olden” times — no twitter, no cell phone, and I only check my e-mail once in a while. So, be patient. I am still an active member of the Oregon State bar, and am motivated to help chronic pain patients on a pro bono basis if possible.

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